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Nola and Jeff with their son Zach who lives in a nursing facility in Alabama.
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What makes a good home for a child?
Safe, stable place
Loving, committed family
Sense of inclusion, belonging
Space for privacy, play, learning
Children have choices
Children have freedom to explore
Children are surrounded by opportunities
Children receive affection, hugs, kisses
Children learn boundaries, values, morals
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Where Kids With Disabilities Live
The Department of Justice last month accused the state of Florida of unnecessarily placing disabled children in nursing homes. The DOJ determined that Florida put into place policies and procedures that limit the access for families to receive assistance at home. Thousands of other physically and mentally disabled children live in institutions across the country, often isolated from their families and decades younger than other patients. In many cases, the institutions are not equipped to suit their needs. Host Neal Conan talks with Donald Bailey, a disabled young adult who suffered a spinal injury in 2008, NPR's Joseph Shapiro, and Katie Chandler of the Children's Freedom Initiative about why many disabled children live in nursing homes, the unique challenges that presents and what some are doing to help more children get the care they need at home.

Listen to the NPR story here:



Joseph Shapiro from NPR reported on a story about Bylon Alexander, 24, and her untimely death.  The story ran on NPR’s All Things Considered.  The CFI is appreciative Mr. Shapiro wanted to run a story and that NPR recognized the importance of updating listeners about what happened to Bylon. 

A letter written to the Commissioner of the Administration on Developmental Disabilities, Department of Health and Human Services, which is seeking public input on "Envisioning the Future."

The Associated Press released an article about the increasing numbers of young people living in nursing facilties around the country. The article speaks about the isolation young people feel when stuck in a facility.  Katie Chandler, from the Georgia Advocacy Office and Children's Freedom Initiative, is quoted in the article.

The NPR Investigative Unit came to Atlanta to report on young people living in nursing facilities.  Joe Shapiro interviewed young people with disabilities and their families who are eligible to receive their care through Medicaid home and community based waiver services, but live in facilities due to a lack of funding for community services.  The story features Mathew Harp, Zach Sayne, and Bylon Alexander, who the CFI is working with to ensure they receive appropriate services to get out and stay out of nursing facilities.

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June, 2007
Wall Street Journal published “Babes Among Elders: Nursing Home Kids” describing children who grow up in nursing homes and featuring the work of the CFI.

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